Rare Disease

Personal Medical Consultant I was lucky to catch up with Doug Lindsay, an expert patient and now working to offer his special skills and experience to other patients in need of help navigating the healthcare system. He was part of the panel at Health Datapalooza:  Taking Charge of Your Own Health – Insights and stories from patients/caregivers […]

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No More Sneakernet This week I am talking to Kevin McGrail (@KAMcGrail), Director of Business Growth at Infrashield and one of a few patients suffering from a rare disease “Anti DPPx Paraneoplastic Neurological Disorder” (you can read more about these diseases here) – one of only a handful of patients diagnosed with this. Kevin is […]

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Personal Medical Consultant I was lucky to catch up with Doug Lindsay, an expert patient and now working to offer his special skills and experience to other patients in need of help navigating the healthcare system. He was part of the panel at Health Datapalooza:  Taking Charge of Your Own Health – Insights and stories from patients/caregivers […]

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